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131 Seizures Later
Epilepsy, Dravet Syndrome, Faith Keira Wilcox 11/15/19 Epilepsy, Dravet Syndrome, Faith Keira Wilcox 11/15/19

131 Seizures Later

36 weeks pregnant and I’m sitting in a tiny hospital room with my toddler and husband trying to swallow what the neurologist had just told us. He was holding up the results from Payson's genetic panel…

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Excerpt from my journal, Seizure 19
Epilepsy, Dravet Syndrome, Journal Keira Wilcox 5/7/19 Epilepsy, Dravet Syndrome, Journal Keira Wilcox 5/7/19

Excerpt from my journal, Seizure 19

Nineteen. Today's number. Just a few minutes past 7am as I lay in bed, his 19th seizure started. This time, I wasn’t even surprised. I got up, put on my bathrobe, and rolled him on his side while he seized…

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Expired Blessings & Payson’s Seizure
Dravet Syndrome, Epilepsy, Facing Fear, Faith Keira Wilcox 9/1/18 Dravet Syndrome, Epilepsy, Facing Fear, Faith Keira Wilcox 9/1/18

Expired Blessings & Payson’s Seizure

ONE MONTH AGO TODAY I was riding in the back of an ambulance dressed in my husbands clothes-- a pair of sweatpants at least four sizes too big for me and the first shirt of his that I happened to grab off the shelf. I had no makeup on…

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